Відео

Chk out citizens in Less Develop Countries!

Please help bring the Enterovirus 71 vaccine to the US. The virus is here! My husband (36) was in a long coma from this and will never be the same. We are in IN and have connected with multiple families via social media across the Midwest impacted by HFM in this way. Daycare providers have no idea that Hand Foot Mouth can be fatal! We need the vaccine and education. I’m begging for help on this, as a 36 year old near widow, now care taker and mother of 2 babies/toddlers.

I had encephalitis 2 months ago. And so much of what you described is exactly what I'm going through now. No I'm not the same person anymore I'm sort of detached and lost. But watching this has given me hope and comfort to move forward knowing I'm not alone. All the very best to you Mathew thank you for posting.

Lucy you are such a great person that I’d love to meet ,

How do you join this group ,

Poor Girl ❤

My husband was recently diagnosed with this after 6 months of misdiagnosis. The neurological community should be more aware of the signs and be trained to test for this early on when someone presents with seizures and memory loss/confusion after being perfectly normal. This illness is life changing and it’s amazing how hard it is to find a neurologist who is trained in treating it.

Please raise awareness with Brain on Fire film true story on this condition! :(

I am Gabriella. I saw Dr Nick Davies this week on 120 harley Street in London. He is a lovely man and very attentive. Since he saw me I am feeling worst. I can barely walk… I asked Mr Davies Please watch the Brain on Fire film what is about Autoimmune Encephalitis based on a true story with Susan Cahallan. Sometimes no MRI no Blood test shows it. Over 7 weeks now having worsening symptoms in this 3 days it persisted symptoms. I can barely function and the ongoing pressure on my head and the way it is harder to walk every day. Please someone help.

I went thru this recently and I was so scared of this

Thank for ur precious detailed info !

This really resonates. Thanks for this

Inspiring! God bless you!

Prayer sure helps

I think I have this now. But noone believes me. Sad!

I was just discharged with Autoimmune Encephalitis, I'm English and married in the United States, I have no health insurance, and no green card yet, in England, they put me in multiple psyche wards through a misdiagnosis of schizophrenia, after spending 12 months institutionalised my wife helped me move here through a marriage green card, and finally got me out of England; two years into our marriage, I began to have a seizure, which triggered the autoimmune encephalitis, I was just discharged last week after two weeks in hospital, a spinal tap, and 14 days on a Saline IV, I'm so thankful to be alive, and had never heard of this condition beforehand, I didn't know my own name, but I knew who my wife was, its horrible to think that if this happened in England, they would have resectioned me into a psyche ward through misdiagnosis, and I would be dead; I feel very lucky.

Hey do you think that there is correlation between benzos an encepyhltis ? Because when people come off benzos they experience all the exact same symptoms as encephylitis. I mean down to a t. An bensos can cause a weakened immune system also can cause nervous system damage. All correlated to encephylotis. If this was the case then people thar are On benzos for long period of time anthen come off may have drug induced encephyltis. All the symptoms are exactly the same. Also benzos can treat brain inflammation. Well then due to there addictive nature it would make sense that benzos can actually cause brain inflammation when taken off. An I beleive that many people are suffering , not from benzo withdrawal, but from benzo induced encephyltis.

Thank you for sharing your story

I’d love to get a vaccine for Enterovirus 71 in the USA. It is available in other countries, but not here. Please! This virus caused both Encephalitis, Meningitis, Myocarditis, Rhabdo, Pneumonia, Lung Hemorrhage, and 6 Pulmonary Emboli! A long coma and recovery at just 36. The virus was from my daughter’s preschool and we know of many children who also suffered.

Thank you

I have this. How do I get help?

Is there a support group in Germany? I could not find one. Patients in Germany reading this please comment. (:

Sir i am dr.vinayak patil. My 5 year old daughter has autoimmune encephalitis and is in the hospital since 15 days. Ivig inj, inj methylprednisolone, inj levipil(Levetiracetam), inj Fosphenytoin (neofost), inj Gardenal (Phenobarbitone), inj Dexmedetomidine all started on drip. still did not get much result, seizures came 3/4 times a day then in drs given Midazolam drip and put on the ventilator. And it helped in reducing the spikes in the brain . Then some seizures went away. After applying midazolam drip after 2 days midazolam inj were stopped. And removed the ventilator. But now after reducing midazolam, seizures are still occurring in less quantity. Now there are 3 anti seizures drugs along with inj Lacosamide and tab Tapomac. There is still some abnormality in the eeg Feedback

I had a seizure and posteriorly dislocated both shoulders. And it scorched my corneas so I was blind for almost a year. Prosthetic corneas do the trick.

😢😢😢😢😢 i feel your pain my sister

You're a great mother, and a great person for telling your story.

I was a professor and a PhD holder before I got autoimmune disease and autoimmune encephalitis, I cannot do anything anymore now, I need assistance from the encephalitis society...

Wow i got mengitis and then mine also turned into encephalitis.and wow he is going threw same as me im struggling with liking the new me i desperatly want to get back to the old me im just a shadow of the old former me 😮‍💨

I was diagnosed with Autoimmune Encephalitis last year, in August. My life has not been the same since. I was having two seizures per day, behaving as I was completely out of my mind. I wasn't me, and I do not have many memories. I was lucky to have been diagnosed quickly, within a month. I started the treatment with steroids, immunosuppressors, anti seizure medication, and a bunch of other stuff to mitigate side effects... Thanks for posting this.

How is /was it vaccine preventable? I had my childhood vaccines yet still got encephalitis

My mom is suffering from HSV encephalitis, she is in ICU from last 18 days. Please pray

Hi My Wife is same case , pls help me get resources how she can recovery fully

I’m 33 scotsman had encephalitis when I was 2years old live a normal life I’m a chef I have kids wife Your daughter will grow up and never look back 👌🙏

All of these individuals are so intelligent. I wish there was more education about Encephalitis and how it can change a person. It was hard for me.

Hi I just read this and we think i have Auto immune Encephelitis, got Bad EEG readings, migraines, fatique, memory issues im 62 and it took 55 years to think outside the migraine Box we ma could have found it earlier.what is the treatment? Thanks in advance.

This LGI1 encephalitis is relatively rare (according to my neurologist). There are probably fewer than 10 people known to have it in Switzerland. And I feel very lonely because of it. That makes your publication all the more valuable. I immediately recognize myself in some of your problems (emotionality, memory, tremors, etc.). I was never tearful and I hated myself for crying in the middle of the family, seemingly over nothing. I start to realize... Thank you so much for this video!

Sir doctor suspect JE virus for 3and half year boy he is completely loss memory and not recognised any one .any solution for this disease please help me

Excellent What is the difference between HiV encephalopathy and HIV encephalitis?

Is it possible to get encephalitis from 'tick bites" from our toy poodle?

====== 2021 ====== I had it exactly three years ago at the age of 34 and my doctors in germany recognized it and saved me. I had a fever for about a week (38-39.5°C), eye pain with eye movements and I couldn't name objects properly. I mean I would have had neck pain with neck movements as well. I did not have a cold or cough on this. For example, I wanted to drink Coke, but I couldn't name it anymore. I used some other word that didn't make sense. The emergency physician then suggested that I might have herpes on the brain. Without his assessment, I very likely would have died a few days later. I could barely speak, write, or even use a cell phone during my time in the hospital. I couldn't remember what year it was. Thanks to rehab and subsequent medical care, I was able to learn almost everything again. Even using a computer was new to me again. The first few weeks in the hospital and rehab felt to me like I was going through the time from birth to now all over again. My non-medical guess is that my brain rebooted like a computer. Now, I am back at work (I recognize everything but can't always name it). I have difficulty remembering personal names, but I can remember technical terms with practice. Thank you to all the doctors who are working to improve health. ====== My second birthday after HSE & my new learning path (2023) ====== I have found a way for me to better remember new and very abstract words as well as information again. In the following example I want to remember the word Herpes Simplex Encephalitis (not easy at all for me, although I had read it very often after the illness). 1. Using Anki (a free and open source flashcard software), I create a flashcard with the following tools and commands, which I then look at and practice every day repeatedly on my cell phone or computer. 2. Using a speech-based artificial intelligence like ChatGPT (not completely free), I create a mnemonic with the following command to somehow visualize the first letters of Herpes Simplex Encephalitis, i.e. HSE: Command to ChatGPT: "Can you come up with a pictorially imaginable mnemonic sentence with very simple words for the following letters, assigning exactly one word to each letter so that the number of words equals the number of letters: HSE " One of several possible answers on the part of ChatGPT: Hamsters Spin Endlessly 3. With another artificial intelligence for image creation like Midjourney (not completely free) I create a picture of a Hamster in a wheel. (Sorry, I can't copy pictures here) 4. As a question I put in Anki: "Which disease did I have?" 5. As answer I put in Anki: "Herpes Simplex Encephalitis | mnemonic: Hamsters Spin Endlessly | mnemonic image: "The picture of the Hamster in a wheel". 6. In my case, I can now remember this word better because some part of my brain is linking this information together. The advantage of artificial intelligence for me is that I can create many flashcards that are relevant to me quickly and easily. It's not an easy way back, but we'll find one or more ways.

Mine came from a flu

I caught it in september last year and still going through it now it's a horrendous illness were people look ar you and think your normal But on the inside your weighted down so heavy and can hardly walk plus your memory is shot 😮😢 It's a horrible crippling disease that can infect or inflame your brain 😢😢 And can take months to get better if your lucky ?? Which I am I'm still here So I truely feel for anyone who gets this to stay strong and positive even though it's hard

i have had shingles,zozterherpes,hapatities never received help or treatment or care or concern at all, i have had in 82 a very serious pid which gives me bad back pain and huge bruises and still get no concern or care, been staged diagnosed into a parnoid scritzo mental ill never experienced or had am very balanced inspite of bad group wh have severilly abused me and have now death wish on me so to hide their crimes on me and they still nx door spying harrassi g me up to this minute,tbey gag me via ele tronic abuse weapons under helpthey thiefing me too and bla ing me,nothing get done

Is it possible to not have a fever when HSV Encephalitis presents itself? Can the virus continue on for 3-4 months if untreated?

So scary.

Great, informative video, thank you so much. My 55 yr old Husband was admitted on the 15th July 2023 with encephalitis simplex herpes virus. I had never heard of it prior. He was in ICU 11 days, then into a regular ward for almost 2 weeks. He's back home and recovering well & has great support by the hospital, speech, physiotherapy & occupational therapy. His main issues are memory, remembering names of people, mainly new people in his life. Remembering in general , fatigue and he also feels the cold more.(although we live in Portugal and it's quite warm here at the moment)